new to this

by Chad
(Ofallon, MO)

just found out my son Elijah(2 1/2) has it and we are currently in the process of setting up everything we can to help him. To be quite honest we are scared and would greatly appreciate any and all resources that are out there for the st. louis area. Thank you in advance for your help. Chad and Kate

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Sep 29, 2015
by: Anonymous

This is my first time i visit here and I found so many interesting stuff in your blog.Thank you so much for sharing this great blog. Keep it up.

Mar 15, 2013
Nick- Apraxia 2 1/2 yr old- new diagnosis
by: Amie

Trying to find a blog for mommy support through this. Our son Nick runs around like any other 2 1/2yr old but doesn't talk. Cognitively he will go get what you ask or point at things to get his point across. But doesnt so much as say mom or dad. Just in the last week he has started momma at times. 2 weeks ago had an eval and they said Apraxia. He has random grand mal seizures which started at 15 months-which is also a shock to our family with no health history of any of this. We wonder if seizures attribute but the speech therapist didnt think so. Breaks my heart to see other 2 yr olds like parrots and see him so frustrated not talking. Trying to figure out the best way to work with this and teach him. Any tips?

Mar 08, 2013
Chad and Kate
by: Mandy

My situation mirrors yours. We live in St Charles MO. Meeting with the school district next week. We are feeling alone and overwhelmed too. We are hopefully going to be using United Services for therapy but the Quail Ridge school sounds promising too. My email is Maybe we can meet somewhere and chat and let the kids play?

Feb 26, 2013
Just Moved...HELP!
by: Joanne

We just moved to the Valparaiso, Indiana area and are trying to find quality speech therapy for my 3 year old daughter. After much testing...from neurologists and MRIs, the Thompson Center for Autism, immunologists, ENTs, Mayo clinic in Rochester, MN, PT, OT, ST, vestibular evaluations, we have been thrown into the global development delay category. My daughter doesn't speak and I believe it's speech apraxia. Can anyone tell me how your child was evaluated/tested to determine if he or she had it?

Jan 27, 2013
by: Erin

My daughter was recently diagnosed. She is in speech therapy two times a week. The therapist is recommending to also go through the school system. When we went for a screening they "flunked her". But they did not give her a chance due to her inability to talk. Me and my husband are concerned about putting her through the pre school program through the school since they commented on her being in there throughout her school years. Do you have any suggestions on what to do? We live in Illinois. Thanks

Jan 15, 2013
New diagnosis
by: Jim Heuer

Good morning Chad, I understand and have felt your fear with a new diagnosis. Though rest assured there is help and support. My youngest was diagnosed at approximately the same age. And though assistance, support and dedication she has blossomed since, to the point of obtaining honor roll qualification as a third grader just last week.

If your diagnosis came from Parents as Teachers, I would strongly suggest discussing options with them, If not reach out to them.

Locally, my daughter spent two years in pre-school at the Quail Ridge Early Childhood Center in Wentzville. The teachers and therapist there were priceless in her progress. By the time she was old enough to enter kindergarten, she was able to enter a “traditional” class room and has continued to progress. I would STRONGLY recommend either enrolling there, or at a minimum spend some time with a visit. If enrolling is not viable, they can also offer additional resources and support.

Most importantly know you are not alone, and there are many willing to help in any way possible!!!! If there is anything I can do to help, please do not hesitate to let me know.


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