Apraxia and Grand Mal seizures- Mommy support

by Amie
(Derby, KS, USA)

Hi I am Amie, mother of 4. Trying to start a blog for support. My 2 year old has been diagnosed with Apraxia 2 weeks ago. Cognitively he is very smart and will go get things you ask, he just doesnt talk. As he gets older I see him becoming more and more frustrated. At 15 months old Nick's whole body locked up, became stiff, he quit breathing for 2-3 minutes and turned blue. This was his first episode of a grand mal seizure. We were so devastated as neither myself or my husband had seen this before. I am a Registered Nurse so of coarse I have read about seizures but its all a learning experience for me. Nick has since had a grand mal seizure about every 3 months lasting about 6 minutes each and is on Keppra daily to control them. I am fortunate to have a best friend who helps watch him the days I work because we are finding it hard to find daycare we can fully trust with his medical concerns. Any tips on how to help with Apraxia? Anyone have experience with this?

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Jun 27, 2015
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great comment NEW
by: Vaughn

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Nov 05, 2014
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by: Anonymous

Nick is actually doing SO SO SO much better! We have been seizure free for over a year now. His speech is doing better as well. He is delayed with speech more than others, for sure. But he will TRY now and actually shows interest in wanting to learn. before, he would just be frustrated and hit us when we tried to get him to talk. I have been so busy I haven't pursued speech this school year yet and honestly, he is doing better NOW than he was DURING SPEECH! Stay strong over there! Its rough on a mommy heart to deal with all this!

Nov 05, 2014
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Very similar situation NEW
by: Nikki

I read your post and can't believe how similar it is to ours. I am also an RN and my son had three of the episode where he decebtate postured turned blue and lost bowel and bladder function. We were told it wasn't seizures, he was autistic, and that I was reading too much into it. He has now been diagnosed with complex partial epilepsy, he has a chiari malformation, has abnormal swallow study, and now I'm told he has apraxia. He says a few sounds but most of time doesn't say anything. I didn't see the date of your post, where are u at on you journey now? Did they say that those episodes were considered grand mal?

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