Apraxia and Grand Mal seizures- Mommy support
(Derby, KS, USA)
Hi I am Amie, mother of 4. Trying to start a blog for support. My 2 year old has been diagnosed with Apraxia 2 weeks ago. Cognitively he is very smart and will go get things you ask, he just doesnt talk. As he gets older I see him becoming more and more frustrated. At 15 months old Nick's whole body locked up, became stiff, he quit breathing for 2-3 minutes and turned blue. This was his first episode of a grand mal seizure. We were so devastated as neither myself or my husband had seen this before. I am a Registered Nurse so of coarse I have read about seizures but its all a learning experience for me. Nick has since had a grand mal seizure about every 3 months lasting about 6 minutes each and is on Keppra daily to control them. I am fortunate to have a best friend who helps watch him the days I work because we are finding it hard to find daycare we can fully trust with his medical concerns. Any tips on how to help with Apraxia? Anyone have experience with this?